Help design an online tool for stress in early Ulcerative Colitis
Join our online workshops to shape a new intervention for managing stress in early Ulcerative Colitis (UC)
About the study
An Ulcerative Colitis (UC) diagnosis can affect all aspects of life as well as the way we perceive ourselves and our mental health. Dealing with issues that cause stress in early UC may protect against poorer physical and mental health in the future.We’re developing an online support tool designed specifically for people who are newly diagnosed with UC. This tool will be based on real experiences and research, and it aims to help navigate the first year after diagnosis with more confidence and less stress.Your input could make a real difference. By taking part in this project, you’ll be helping us create something that could support people with UC at a really difficult time.
About the workshops
If you decide to take part in this project, you’ll be invited to join two online workshops, each lasting 2.5 hours.These workshops will bring together people living with UC, healthcare professionals, researchers, and others to co-design a new online tool aimed at reducing stress in the first year after diagnosis.Workshop 1: Exploring Needs and Developing Support Ideas
In the first session, we’ll focus on how an online tool could help address the key stressors identified in earlier interviews with people recently diagnosed with UC. You’ll take part in group discussions to share your experiences and identify ways in which an online tool could reduce these stresses.Workshop 2: Shaping the Solution
In the second session, you’ll work with the group to review and refine a prototype of the online tool. We’ll explore its content, format, and usability, and gather your feedback on how it can be improved to better support people with UC.Both workshops will be video- and audio-recorded so we can accurately capture your insights and ideas.
Who can take part
People with Ulcerative Colitis
✅ Living in UK
✅ A diagnosis of UC for at least 6 months
✅ Be able to read, write, and speak English
✅ 16 years old +
✅ Access to an electronic device and internet to participate in online workshops
Healthcare professionals and others
✅ Living and working in UK
✅ Experience in treating or managing patients with ulcerative colitis OR involved in the UK UC community
✅ Interest in contributing to patient-centred research
✅ Access to an electronic device and internet to participate in online workshops
Researchers or people with experience in digital health
Before you join
Please read the information sheet that applies to you:👤 For People with Ulcerative Colitis
🩺 For Healthcare Professionals
🏢 For Others
Questions?
Contact Jacqueline Black
E-mail: [email protected]Support service for people with ulcerative colitis
Crohn’s & Colitis UK helpline
Tel: 03002225700
E-mail: [email protected]
About me
My name's Jacqueline Black and I lead on the Stress in early UC study. I am a PhD student in the Faculty of Nursing, Midwifery, and Palliative Care at King's College London. I have a background in health psychology and work closely with my research team and Project Advisory Group, which is made up of people with UC, healthcare professionals and charity representatives. You can email on the address above or use the links below to follow me on social media.